I'm struggling - just a bit.
I have been going through thick brain fog, which in turn causes me emotional distress. Lethargy rules my days (not to mention headaches). I can't seem to work out complete thoughts and plans, and I feel as if I am accomplishing nothing, day after day. But you wouldn't know it to look at me.
I don't like the invisibility of this disease. I don't agree with how people compare and judge people (and their relationships) who live with this disease. If you have this disease, or have read about with any attention, you would know that no two people experience it the same, and along with that, personal reaction to aspects of the disease are different.
There is no "we all have the worst symptom" club...because what is the idea of the worst symptom for one, is not the same as the worst for another. And with that, there is no general, "worse off than another", for those suffering with relapsing remitting MS.
There are no "relationship rules for those living with MS".
Hmmm, where did that come from? What I just said are reactions that I have experienced lately: about things that I have heard, been told, and read.
I'm no longer wondering the meaning is to my life; I'm not searching for my purpose. But I am looking for some control and I'm forever fighting with my own expectations of myself.
Expectations of myself...totally within my control.