another blog

The other night, I updated my "interests", as listed here on blogger. I decided to include MS as an interest. This means that bloggers with similar interests can find each others blogs. When I searched blogger using MS as the criteria, a particular blog caught my attention.

Doug is from the east coast of Canada, and he writes two blogs. I read a number of posts on his MS blog, and found myself moved by two in particular. Moved to tears...tears of sadness, tears of familiarity, tears of reality. In his post from February 7, 2006, Doug discusses his current struggle through dizziness, reactions of others, and "discovering what it means to have MS".

He said so many things that were familiar to me, including taking anything else the disease had to offer, except for the dizziness. I have said that! Dizziness is not something that is easily quantified by someone else (does that make any sense?) who has not suffered from it. He discussed realizing that he has a disease-when he finally had to alter his life, because he has MS.
For myself, I am forced to alter my tasks, my plans and my reactions to better suit this disease. I haven't yet had to physically alter anything. No wait, now I sit at the head of the table, or any position that limits my need to turn my head from side to side. Yup, it's necessary.

The second post from Doug that hit home with me was on February 9, 2006. It is a rant against the health professionals who don't know what to do for him and avoid dealing with him. He mentions how the diagnosis comes with a promise of a manageable disease, but no one can figure out how to manage it or him. Promises start to look like lies.

I have already posted on these same topics, and I am sure to post on them again. But when you are told that MS is a "personal disease", and that no two people are going to experience the same feel alone. And not only alone, but it allows you to question the diagnosis and the symptoms. So to read that someone else is thinking like I am, and feeling like I am, and fighting like I am...I didn't feel so alone. I stopped questioning my current state...temporarily.

Catch you tomorrow,



Ladyfingers said...
December 21, 2007 at 8:30 a.m.

Yes, it is always nice to know
that you are not alone. Support groups can be great for this very reason. They also can be dangerous however because they turn into a platform for complainers who end up
dragging everyone down. Perhaps the internet has taken over the role of support groups. Too bad in a way. There is nothing better than a hug from someone who understands exactly what you are going through. The internet can't do that.

Mom XX

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