I woke up this morning, to discover that I still have MS.
Yesterday, I woke up many times throughout the day. To date, I would say that yesterday was my biggest battle with the fatigue monster. I would be up for less than an hour, and then back in bed for more than an hour. I felt useless, embarrassed, and frustrated.
I've been wondering, and thanks to a new contact, I have recently heard that interferons can help with fatigue. Interferons are those fab DMDs (disease modifying drugs). I've tried a couple of them, but currently, while deciding things for my future, I'm not on one.
When I had my annual check-in with my MS neuro earlier this month, even if he were to prescribe me something for my fatigue (which is now in the hands of my GP) he wouldn't anyway, knowing that I may likely be trying to grow my family. So while I struggle to stay on my feet, awake, alert and useful, I remind myself that there are things to help me (although not guaranteed), if I want.
I'm hoping that the fatigue workshop (a six week stretch) put on by the MS Occupational Therapist will be useful. I don't know too much about it, except that I'm a good candidate. Apparently, I'm not alone in feeling useless, guilty, confused and wondering if other people feel the same way. The discussion topics will include "what is rest?", and "creating a routine of have-to's and would like-to's".
Maybe tomorrow will be different.
Emily
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2 comments:
Yes my dear Em maybe tomorrow will be different. Hopefully, the day will come when all of the tomorrows will be better. A cure will be found & they will be better for so many people.
Mom XO
Hi Em
I just found your blog (I'm just a little fuzzy on how I actually found it!) and I'm so glad I did. While I don't have MS, I do have endometriosis, have recently been diagnosed with chronic neuropathic pain, and am waiting to hear from the doc on a diagnosis of fibromyalgia. AND I'm from Winnipeg!
YOU ARE NOT ALONE. There is at least one other person (ME!) who knows what you're going through.
I can see from the comment above that you have family support, and that is so important. If you need to chat, or vent, or commiserate, you (now) have my email.
Take care, Em.
Kate
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