My CCSVI Thoughts

I haven't been up to much lately. A couple of weeks ago - at the breaking of the CCVSI (Chronic Cerebral Venous Insufficiency) news, I started a post all about it, and didn't finish it. I couldn't work my thoughts in to any sort of flowing and worthwhile words.

So now that the first flow of hype about it has settled, and you know what it is...I'll just share my feelings about it. I'm glad that I don't feel the need to explain it in depth.

I am cautiously optimistic about the treatment and findings. Obviously, I feel of a bit of the, 'Pick me, pick me" feeling that you get when teams are being selected. If someone would like to check my veins and if necessary inflate some balloons in them...go for it, if it means that I won't be so darn tired and foggy everyday.

That says everything about what I am thinking about CCSVI:

1. let's do it!
2. I don't care about cause or consequence and which came first...just give us relief, which it seems to do

I have had conversations with people about the new and exciting findings...and I have a number of questions, including these:

1. How does Vitamin D fit in to the picture?
2. If narrowed veins are related to the disease, why is it primarily a disease of the northern hemisphere?
3. Why can't we just have our veins checked and fixed, and worry about the "why" later?
4. I have low feritin (stores of iron) this related?



Little bits about my life with MS

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