body twitches

Since the beginning of my new reality, I have had random body twitches. Finally, they are reaching a frequency that I find concerning. All I can think about, is that I need to get back on my DMD (Rebif)...maybe it will make a difference. Did stopping my Rebif allow this to happen sooner rather than later? If I stayed on the Rebif, would it have not happened at all?

At first, the twitches were few and far between, not even a weekly occurrence. We joked that they were my "tell" in a poker game. I mostly had a shoulder twitch when I was stressed. Now, the twitches encompass more of my body, and I think, are more noticeable. They sure are to me!

I can be lying in bed, trying to fall asleep, and my leg jumps. Nike the cat, doesn't like this so much, as it disturbs her blankets. I can be talking with Jason, and my shoulder-upper chest-head area will jerk. It isn't a tremor - it's an all out movement: out of position and back again. The freakiest time is when it is my entire body - lying in bed, and I do the worm...or a body wave.

I don't know if there is anything I can do about it. When I first started with Dr E., my MS specific neurologist, I asked him if the twitches were caused by the MS . His response was non-committal. This was my way of telling him about the issue: I had already addressed it with my first neurologist, who wasn't in to treating symptoms, but rather seeing what symptoms would arise. My GP is supposed to be my primary care provider, even for MS, BUT, as he as told me before, he doesn't know enough about the disease. So, I'll wait another year, and take it up with Dr.E when I see him next.

Emily

3 comments:

Melissa, Multi-Tasking Mama said...
October 20, 2009 at 8:09 PM

I call it my restless body syndrome. I take clonazepam at night for this and it helps the twitching- it was keeping me awake. Still twitch some during the day though LOL

ladyfingers said...
October 25, 2009 at 4:43 PM

Em don't beat yourself up with "what-ifs" they'll drive you crazy. It must be very difficult not having control over what your body is doing.

MomXO

Anonymous said...
January 3, 2010 at 5:35 AM

Your blog keeps getting better and better! Your older articles are not as good as newer ones you have a lot more creativity and originality now keep it up!

Little bits about my life with MS

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