This morning, I had my appointment with the hepatologist. I wasn't scheduled to see him again until December, but the my MS doctor is concerned with my liver enzymes. But the wonderful hepatologist says that everything is need to be yanked off the Rebif. And hey, I'm down a few pounds since I saw him last...exactly as he ordered.

*yes, I did say "wonderful hepatologist". I really mean that. He's quick and to the point, but also friendly and funny.

Yesterday, I received a call from my nurse at the Multiple Support Program (provided by the drug company). She calls me periodically to check on things. I mentioned that everything seems to be going well, except that every injection area has at least one red blotch on it. The blotches aren't tender to the touch, but when you can't inject in a red area, it limits how many places you can go. When she asked me how long they last, and I said about two weeks, she said that if they ever seem to not go away at all, I have to let my doctor know.

I do have one blotch that is a couple days over three weeks old. But it is finally starting to fade, so I'm not going to worry about it. It was from the first time that I ever injected the Rebif into my stomach. Annie, Jason, and I were at the Toronto Jays game on an injection day. I carried my needle in my purse, as well as a cotton ball, and my needle clipper (a handy little device that clips and stores the needle tip) and went into a bathroom stall when the time came. How is that for shoot-and-go?!

Shockingly, the Rogers Center did not have a needle disposal container in the washroom.

So - all good news. I can stay on my Rebif. I'm happy for that. It means that we are one step closer to some consistency in my life.

I hear the lunch bell ringing...



~ Charlene S Noto said...
June 12, 2008 at 2:49 p.m.

I've never even seen a needle disposal container in a restroom! The US really does need to step up to the plate.

I've been on Rebif for a year. I don't get the red spots but I am getting very tender areas and a mottling of my skin, particularly on my thighs. We're re-evaluating this month to see if Rebif is working for me.

Best of luck with yours! :-)

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