Lately, I have found that my concentration has been heavily directed towards things other than my bits. And when I concentrate - I fry my brain!
So, I have a week of bits to share with you!
1. Let's start off with Rebif - my three times a week injection. It has been going really, really well. The burning sensation that happens during the 12 second injection is decreasing. The flu-like symptoms within the next 24 hours are pretty much non-existent. I received my new pharma-care deductible letter in the mail last week, and we should have that met before the end of June. The only thing is that I do have some discomfort in all six of my injection areas. Oh well.
2. I have begun the process of filling out my Canada Pension Plan Disability Application. What an ordeal this is! I have to "paint a real life picture" of my life, cleverly hidden where it can be easily viewed, in the answers to the one line questions. I am filling out this application because it is required of me, as a part of my Long Term Disability benefit with my employer.
3. Jason has been off of work for the past week with vertigo. Yes, it's been the wobbly and spiny show here at our house. It has been enlightening for Jason and I to be in somewhat reversed roles. I don't like to watch him struggle, and he has a better idea of what I experience. What has made his situation even scarier is the timing of it. Had his symptoms started one month later, he would have been close to being a copy of me, two years ago.
4. With Jason being spiny - I have driven the car for any trips that we have made.
Ok. We're all caught up...and just in time, because my head is starting to squeeze!
Emily
Sunday
Posted in on byI have so much to say today...
First of all, Sunday's walk was excellent! Here is the "unofficial" team photo (we were missing two people at this point)
The sun was shining, the sky was blue...and the wind was extra crisp!
While overwhelmed by the amount of people, I still managed to keep my emotions in check. I think that I was more concerned with the task at hand: don't step on anyone, don't get stepped on, and keep a decent pace so that I would be able to finish the walk. Corina, Madison, and I walked four kilometers. We probably could have walked further, but instead, chose to line up for a free submarine sandwich!
After the walk, Corina and I returned home (after meeting up with Jason, Jason, Davina, and Gil to give them a final push on their 17 km walk) and had a rest. Later that afternoon, most of Em's Slackers made it back to our house for a, "You're So Awesome" team thank-you party. What a feast!
Jason and I could not have pulled of such a gathering without the help of Mom-Florence, Dad-Gil, Corina, Jason and Shaun. Thank you all!
A colourful sampling of our feast:
We would also like to thank everyone who walked and pledged our walkers...wherever they walked! We will keep you posted on our final fundraising total.
On another note...today is a PID...and I am feeling pretty decent. If anything, I think that I'm still just a bit tired from Sunday...as I knew that I would be...no hard feelings. I even woke up around 4 o'clock this morning and didn't have any discomfort! woohoo!
ttfn!
Emily
can we co-exist?
Posted in symptoms on by
I haven't had the greatest 24 hours. I'm having to deal with a return of my "breathing problem". I don't think that I have ever discussed it in great detail here, because it hasn't been much of a problem since I started blogging. Sometimes, it shows up at bedtime, or when I am super fatigued. For the past 24 hours, it has been with me the whole time.
If feels as if someone is standing on my chest. This makes it hard to get a full breath of air, and I find myself having to take in a lot of deep breaths. Back in the fall (I think), I had some lung function tests, and saw a respiratory doctor. My MS doctor referred me to this specialist, suspecting that it was the MS causing my difficulties, but he wanted to make sure. Sure enough, my lungs are fine - no other medical reasons for my struggle and discomfort - just MS.
This scares the socks off of me. Last night, for the first time in a long time, I cried for myself. Is it really necessary for this stupid disease to steal my oxygen? Breathing, is an important function. Come on. I don't want this disease.
Sometimes, it's hard to stop myself from imagining what this disease will take from me. I don't think about it often, but I believe that if I am aware of the possibilities on some level, things will be easier to handle, should physical adaptations be necessary. So when I am forced to pull in a deep breath, I don't like where my imagination goes.
Just as frustrating, is the fact that I have had a really stellar week! Other than sleeping away Tuesday, I was busy this week...and ventured out on my own on two different occasions! I was not afraid! I made banana muffins! I did laundry! I raked the front lawn!
Oh...isn't that interesting. I did things like a "normal", healthy person, and got swatted down as if I had snatched a fresh baked peanut butter cookie off the cooling rack! What happened to the wobbles? Aren't they supposed to be my "reality check"?
I tried to trick my body. I thought that I could just keep taking the cookies. I was getting along really well with MS. But rather the trick was on me. I think that all along, MS knew that it was going to swat me. It was just waiting for me to feel good...normal.
So now I'm going to bed, and as per usual, I believe that tomorrow will be better.
Emily
If feels as if someone is standing on my chest. This makes it hard to get a full breath of air, and I find myself having to take in a lot of deep breaths. Back in the fall (I think), I had some lung function tests, and saw a respiratory doctor. My MS doctor referred me to this specialist, suspecting that it was the MS causing my difficulties, but he wanted to make sure. Sure enough, my lungs are fine - no other medical reasons for my struggle and discomfort - just MS.
This scares the socks off of me. Last night, for the first time in a long time, I cried for myself. Is it really necessary for this stupid disease to steal my oxygen? Breathing, is an important function. Come on. I don't want this disease.
Sometimes, it's hard to stop myself from imagining what this disease will take from me. I don't think about it often, but I believe that if I am aware of the possibilities on some level, things will be easier to handle, should physical adaptations be necessary. So when I am forced to pull in a deep breath, I don't like where my imagination goes.
Just as frustrating, is the fact that I have had a really stellar week! Other than sleeping away Tuesday, I was busy this week...and ventured out on my own on two different occasions! I was not afraid! I made banana muffins! I did laundry! I raked the front lawn!
Oh...isn't that interesting. I did things like a "normal", healthy person, and got swatted down as if I had snatched a fresh baked peanut butter cookie off the cooling rack! What happened to the wobbles? Aren't they supposed to be my "reality check"?
I tried to trick my body. I thought that I could just keep taking the cookies. I was getting along really well with MS. But rather the trick was on me. I think that all along, MS knew that it was going to swat me. It was just waiting for me to feel good...normal.
So now I'm going to bed, and as per usual, I believe that tomorrow will be better.
Emily
Subscribe to:
Posts (Atom)
