CCSVI and Me

I seem to have made up my mind for now, regarding CCSVI and me.

While I strive to understand my body...have my finger on my pulse, so to speak...and I like to learn about my disease...I don't have the resources to apply for CCSVI testing.

However, I continue to be interested in CCSVI developments, and patient stories.

One story, that I watched on You Tube, really hit home for me. When I question the accuracy of my diagnosis, I come across a person with the same challenges that I have...and she has MS.

She prepared a video, for her 20 day check-in following the Liberation Procedure. She had a list of "things that I can now do and couldn't do before I was Liberated" and it sounded so much like my life!

She is now able to do FULL grocery shops on her own, and not just pick up the necessities. And after shopping, she can dance around her house! She has had a coherent conversation with her husband, and actively participated in a local trivia challenge (something she has had trouble with because of "recall" problems). And, her heat tolerance is decent...and numbness and tingling has lessened.

That sounds like me!

But what if I were to borrow the money needed for the testing...

No where in Canada can I get the Liberation Procedure.

What if once the procedure is available in Canada, more (or different) testing is required?
*maybe veinography is best, but not offered right now

What if I don't have narrowed veins?

What if I do have narrowed veins?

So for now, I will live through people who "sound like me"...and listen to them enjoy a rejuvenation and a liberation...

Hmmm...that doesn't sounds fair...

Emily

1 comments:

mchen said...
April 7, 2010 at 8:04 a.m.

Hey there emms...
So many decisions and unknowns. That fellow from Ottawa who had the procedure done in Poland has a blog:
http://evanthornton.wordpress.com/

In case you find this helpful or inspiration in any way.

In the meantime, enjoy the aquafit. You GO, girl!!!

Little bits about my life with MS

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