Oh the Twitching!

Oh, my legs. My flippy, floppy, twitchy legs. And now that the weather is changing, and the sun is hotter, my trusty heating pad is no longer going to be a wanted partner in my bed!

For months, I have slept with a heating pad under my calves. I find that without the heat, my twitches are worse. When the twitching is real bad, I lay on my side, and wrap the heating pad between and around my calves, twisting around so that is is tight on my legs: the combination of heat and binding helps to control things.

But now...dear legs...your season of twitches must come to an end....please.

Emily

The Liberation Procedure

I try not to allow these "Bits" to be overly controversial. I want to be informative, helpful, inspiring, and a "bit" funny.

But as I sit here, reading how the radiologist who performed the "liberation" procedure in a Vancouver hospital is now in hot water, I can't help but think...

Professionals who perform the Liberation procedure are "Assisting Living"... not "Assisting Suicide".

So why is the Liberation Procedure illegal in Canada?

"Liberation" is sought because it increases the quality of life of a person living with MS.

Temporary or permanent, we do not know, but to be able to live outside of the "fog", outside of the "fatigue", to feel your limbs, or potentially walk unassisted for even a short amount of time is within our reach...and would be a dream come true.


Emily

*20 of the 93 "suicides" engineered by Dr. Kevorkian were people living with Multiple Sclerosis

CCSVI Rally

Today has been a down day. Lots of time spent in my bed, in my most relaxed and least energy consuming position. What is such a position...and I'm not alone in recognizing this, as I have recently discovered...no clothes, on my stomach, arms spread wide. Wearing clothes uses energy. And lately, I have spent my energy on other things, rendering clothing optional.

Yesterday afternoon, I attended a CCSVI rally at the Manitoba Legislative building. Accompanied by Jason, C-Dazzle, and Jay, I stood in front of the grand building, with more than 100 other Manitobans. CCSVI Manitoba is one of many grass roots organizations sprouting up in Canada, working for the common goal of making Chronic Cerebral Spinal Venous Insufficiency testing and Liberation available (legally) in Canada. Instead of being treated here, Canadians are traveling to India, Poland, Kuwait, and Egypt for the procedure.

Manitoba wasn't the only province or city holding a rally yesterday. And MS sufferers weren't the only ones acting on behalf of CCSVI: The MS Society of Canada took action yesterday as well, announcing that they will be asking the federal government to earmark $10 million for CCSVI research.

At the rally, we raised signs (when not warming our hands in our jackets!) and listened to a handful of speakers including: Duncan, who was "Liberated" in Poland; Jennifer, who's husband is quickly deteriorating from MS, and has had a positive MRV (strictured and collapsed jugular veins); and Manitoba's Health Minister. The common message, directed to doctors, politicians, and those with the power is this:

Remove MS from the equation, and treat people for CCSVI.