I am feeling good today - and I took full advantage of it. The key now, is to STOP. I need to pace myself when I am doing well, because I never know what tomorrow (or one hour from now) will bring.
I rolled out of bed this morning at nine o'clock, and I knew as soon as my feet hit the floor, that I was feeling good. Knowing that Jason is off work tomorrow, and we have some errands to do, I thought that if I was to complete some of the errands today...
So I did. I evaluated what I could do and should do and set up some "rules" for myself:
1. use your rockstar parking permit
2. don't go further than KP
3. only get from the mall what you went for - NO WINDOW SHOPPING
4. if before you leave the house you feel the slightest bit off - DON'T GO
5. take your cell phone
6. don't rush
7. accept that if you are tired, wobbly, achy, or any combination of those later...THAT'S OK.
I did it! I even stopped at Safeway on the way home to check out how far in advance I would need to order cupcakes for a get together.
Yesterday, Tuesday, not so good. I was achy, nauseas, fuzzy headed, and tired. Today, Wednesday...clear head, clear stomach, with a mild amount of pep in my step.
So now, I will rest.
Emily
I need another tissue
Posted in on Monday, April 14, 2008 by Emms
The previous post to this, has a comment that has made me cry - again. Annie (my sister Andrea) wrote about her experience at the Supercities Walk for MS, which she completed yesterday.
I think that I am emotional because she got blindsided by the big reality that is Multiple Sclerosis. Sometimes, you can see the various levels of physical challenges that the myelin destruction causes and sometimes you can't. And at least once a year you can see the social impact that the disease has. The walk can stir up a whole mix of untold emotions inside you!
Once again, I have been reminded of how my disease can upset people that I don't want to be upset! I wish that we could have walked together. Or maybe that would have made the reality even bigger...which may not have been good.
I'm really struggling to get the words out right now.
I know that I am going to be met with this same emotional heavy bag in less than two weeks. I have a feeling that even if I am prepared for it this year, it will still be heavy. My own "social impact" has grown over the past year, which is evident in the size of Em's Slackers and it's honourary members.
Emily
I think that I am emotional because she got blindsided by the big reality that is Multiple Sclerosis. Sometimes, you can see the various levels of physical challenges that the myelin destruction causes and sometimes you can't. And at least once a year you can see the social impact that the disease has. The walk can stir up a whole mix of untold emotions inside you!
Once again, I have been reminded of how my disease can upset people that I don't want to be upset! I wish that we could have walked together. Or maybe that would have made the reality even bigger...which may not have been good.
I'm really struggling to get the words out right now.
I know that I am going to be met with this same emotional heavy bag in less than two weeks. I have a feeling that even if I am prepared for it this year, it will still be heavy. My own "social impact" has grown over the past year, which is evident in the size of Em's Slackers and it's honourary members.
Emily
just so you know
Posted in on Sunday, April 13, 2008 by Emms
Today - maybe even right now...there are unofficial members of Em's Slackers pounding the pavement! Today is the first day for the Supercities Walk for MS in various parts of the country! Lisa in Leamington, and Andrea in K/W ... woohoo!
The reason that they are "unofficial" is that Em's Slackers is a Winnipeg team...I think that I should request cross-country representation for next year!
Putting the Em in Em's Slackers,
Emily
The reason that they are "unofficial" is that Em's Slackers is a Winnipeg team...I think that I should request cross-country representation for next year!
Putting the Em in Em's Slackers,
Emily
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Little bits about my life with MS


