Life and Lemons

I really shouldn't be such a blogging delinquent. I have things to say, just ask Jason! However, I'm not sure if I have the right things to say...that is, I can't decide if this blog is the right place to put it. Right place, right time, or wrong place, wrong time. I had hoped that when I changed my blog name from Em's Bits to Recipes For Lemonade, I would allow myself some more "fun" posts. I felt that I had settled into a groove with my "new life" at home with Multiple Sclerosis and that I had discovered some great little things to take my "life lemons" and make some lemonade. It seemed like a natural and positive progression from where my blog started - "bits" on my experience as a newly diagnosed MSer (and a desire to educate others at the same time).

Oh yes, I want to do all of the above while still keeping some things private - my mom and my father-in-law read this blog and if I wouldn't tell them in person, I won't tell them on my blog.

So now for some big news...I think I might be having a relapse. On March 28, I blogged about the return of my swallowing problems. I am able to chalk that up to stress. Also around this time, and for some time after, I began to experience bouts of anxiety. At the time, I assumed it was because I was "busy" with things to do. And now, why I'm beginning to question if this is in fact a relapse, is the daily appearance of the wobbles. It came to my attention that I have taken 8mg of Serc on three (or more) consecutive days. The usual things that can bring on wobbles and I am able to control, are now out of my control...including sitting still eating my lunch.

From what I recall this is the last time I experienced a relapse . This time, I don't have the bone crushing headache. But I can add a recurrence of all-consuming fatigue this time around...with a full helping of stress.

If you are NEW (or if it has been too long since I last defined it) this is what my "wobbles" are:

I feel as if I am moving, as opposed to the world around me moving. This is also called "subjective vertigo".  I have experienced this from the beginning of my disease.

This is all my brain can handle for now...did I mention that the cog fog is also thick this past while?

Emily

In the Kitchen #8

This is a hands down favourite for both Jason and I: Rachael Ray's Cowboy Spaghetti! I'm sure that we have made it 3 or 4 times, and every time there are leftovers that we freeze for another day.

We might start calling it "Kickin' Spaghetti". Ground Sirloin and bacon...hot sauce and fire roasted tomatoes...Worcestershire and onion...aged cheddar and scallions on top. Since this is a Rachel Ray recipe, you only have to use a pot to cook the noodles, and the rest is cooked in a large skillet!

Follow this link for the recipe specifics

The recipe calls for a small can of tomato sauce and a larger can of fire roasted tomatoes. We haven't found the fire roasted tomatoes to be easy to come by, so this last time we substituted Sweet Onion tomatoes. There are lots of tomato flavours to choose from! Here is the Aylmer selection:

*beware if you select the Spicy Red Pepper tomatoes...we didn't use less hot sauce, and were on fire for days!

Our Rating:

Maybe I Should Go Out

Oh the swallows...

Too bad it isn't the name of a rockin' country band. Sometimes I say to myself, "Oh the wobbles", and these days I say, "Oh the swallows". So you may have figured out I'm not referring to birds in the backyard either.

Yes, it's my swallowing difficulty that I'm focused on these days. I've blogged about this problem before, like when I torpedoed fries and a drink out of my mouth in public or when I squeezed...grabbed...um, just read the story if you want to know ... yeah, THAT problem.

I had been doing so well:

I ate without thinking about it. I enjoyed my meals. I didn't have "returns" in my mouth.

Now, I have to be conscious of chewing, moving food to the back of my mouth (the tongue moves the food).

A quick video on how swallowing food happens

I regurgitate food that is "sitting"in a la la land...food that is just "hanging" out in a dangerous spot. I drink more water while eating.

But I haven't done anything embarrassing or provocative...dare I say it's been boring? Maybe I should go out for dinner and see what happens...
Little bits about my life with MS

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