Coming soon...

a FLOWER WATCH update...

I went to the Mental Gym again

Whew - another two minutes at the gym!
Here is the link for the "exercises" that I just did:

http://www.cbc.ca/testthenation/mentalgym/archive/week4/

What was my score, you ask..ok, I'll be honest. I scored 70% (1:25:913) and I completely zoned out on one of the questions (meaning, I didn't get an answer in on time). So I redid the test, and scored 80% (1:05:974). I put in all the same answers as the first time, and obviously didn't miss one this time. The unfortunate thing is, I believe that I scored 100% - I wouldn't change my answers...none of them.

I went to the mental gym today because I just finished reading some information on cognitive issues and MS, and they do recommend some mental exercises. I actually consider this blog to be a mental exercise: one of the difficulties that I am experiencing lately is finding words. It happens most often in conversations, and I either can't find the right word to use, or I can't remember the name of someone or some place.

So if I spoke to you the other day, and I'm now telling Jason about our conversation it sounds something like this: "Umm...oh what's her name...crap...you know...*sigh*...{frustration is setting in}, come on Jason, you know who I mean...nevermind."

So please accept this apology in advance - I don't think that you're crap, and it isn't you that is frustrating me.

Sincerely,

Emily

P.S. In reality, it is difficult to accept this aspect of "My New Reality". I am afraid of how it will effect my ability to perform my job. I find conversations difficult, in particular on the phone, when the person on the other end can't see my difficulty. But...I need to find the humour in it, and I need to find the humour when it happens. I can do it.

Provincial Drug Funding

I'm going to "speak" about a topic that I know little about, and that I am only just beginning to understand.

As I understand it, each province has it's own personal healthcare funding (in Manitoba it is called Pharmacare, in Ontario it's called Trillium etc.). My MS drug therapy is given what is called "Exceptional Drug Status", and I only have to pay a deductible, and then Pharmacare covers the rest.

As one of the resources from the drug company, I am able to speak with fellow MS patients who are on the same therapy as me. During my first week, I spoke to a terrific woman in Nova Scotia - she was so open, and chatty - and she asked about the drug coverage here in Manitoba. She told me that she had been speaking to a man in Newfoundland, who upon his MS diagnosis, was recommended to quit his job, and go on welfare, as this would be the best and cheapest way to get the drug therapies.

Please read this link:
http://www.mssociety.ca/en/releases/nr_20070524.htm

I understand that healthcare is a provincial responsibility, but what I don't understand is how the province you live in has such an impact on your frontline treatment against a disease that is the same across the country.

Can drug therapies that cost over a certain amount of money, automatically be federally funded?

Glad to be a Manitoban (today, anyway),

Emily
Little bits about my life with MS

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