Tonight, will be my last Rebif dose of 20%. I really hope that the theory behind titration works for me!
I have had a couple of post topics on my mind lately, but I have not transferred my thoughts to the screen. I want to share my thoughts on how, in my situation, MS has effected my family and friends. But I am not confident that I can clearly begin to describe the reality. However, I think that it is important because I want to share my experience in the most honest and thorough way, and the effect on the people in my life can appear to be overlooked if I just discuss my battles.
I also should share with you, my "hurdle du jour", which isn't just today, but everyday. I have been experiencing an increased difficulty in finding words, saying the right words, remembering things, hearing things correctly, and executing tasks (like brushing my teeth) in the same manner as I have for at least three years. I guess that these refer to cognitive difficulties. Trouble finding the right word in conversation, has been present from day one. However, only just recently have these cognitive difficulties caused stress for Jason and I, as the frequency and severity has increased.
On a positive note, yesterday, I went out in the car by myself. woohoo!
Share with you later,
Emily
bouncing all around
Posted in on Sunday, February 24, 2008 by Emms
Yesterday, I had what I would consider a good day. The week leading up to yesterday was not such a good time as my energy level was very low. I have to learn to better control my thinking regarding this "take each day as it comes" business.
I emotionally struggle with the physical come down after a good day/week. The week that Jason was on vacation, the week that we had scheduled the happenings for everyday, was quite successful for me. Now this past week, the week following the good week, I had a big zero in the energy department. So instead of allowing that, I felt guilty about it. I questioned my exhaustion...is it just boredom?...laziness?
The next thing I know, I'm bouncing around the kitchen: unloading the dishwasher, loading the dishwasher, scrubbing the sink, cleansing the counters. I even planned and almost single handedly executed supper 6 hours later! Now today, I will take it easy. Then tomorrow (ideally) will be another good day.
Despite the emotional ups and downs over my state, the stress of the unknown with the injections on Mon/Wed/Fri, and the challenging week that Jason had at work...I have barely been wobbly! I even have my eyes riveted to a novel for about a week now!
I REALLY need to stop beating myself up for having a few down days!
Emily
I emotionally struggle with the physical come down after a good day/week. The week that Jason was on vacation, the week that we had scheduled the happenings for everyday, was quite successful for me. Now this past week, the week following the good week, I had a big zero in the energy department. So instead of allowing that, I felt guilty about it. I questioned my exhaustion...is it just boredom?...laziness?
The next thing I know, I'm bouncing around the kitchen: unloading the dishwasher, loading the dishwasher, scrubbing the sink, cleansing the counters. I even planned and almost single handedly executed supper 6 hours later! Now today, I will take it easy. Then tomorrow (ideally) will be another good day.
Despite the emotional ups and downs over my state, the stress of the unknown with the injections on Mon/Wed/Fri, and the challenging week that Jason had at work...I have barely been wobbly! I even have my eyes riveted to a novel for about a week now!
I REALLY need to stop beating myself up for having a few down days!
Emily
old hat/new hat
Posted in on Tuesday, February 19, 2008 by Emms
I'm feeling like an old hat at this injection stuff...not that I have other painless injections to base this on!
Yes, yesterday's injection went as smoothly as the first one. So this has prompted me to do some more thorough research into the dreaded side effects. I feel that it is still too early to think of myself as "one of the lucky ones" who doesn't experience any difficulties when starting Rebif. According to my research, the "yucky" stuff typically begins by the first few injections. The titration (.1ml compared to the full dose of .5ml) is designed to ease the "yuckies".
If you have been reading this blog for many months, you would know that back in July, I took on a client at work. Unfortunately for all involved, this job is still going on, and I periodically must think about it: make decisions, visit the site, and advocate for the client. Now, I am thisclose to stepping away from it. I recognize that the situation is not good for me at this time (it wasn't good for me 4 months ago either). So I need to try on a new hat: the hat of a person who has done all that she can do.
Emily
Yes, yesterday's injection went as smoothly as the first one. So this has prompted me to do some more thorough research into the dreaded side effects. I feel that it is still too early to think of myself as "one of the lucky ones" who doesn't experience any difficulties when starting Rebif. According to my research, the "yucky" stuff typically begins by the first few injections. The titration (.1ml compared to the full dose of .5ml) is designed to ease the "yuckies".
* * * * *
If you have been reading this blog for many months, you would know that back in July, I took on a client at work. Unfortunately for all involved, this job is still going on, and I periodically must think about it: make decisions, visit the site, and advocate for the client. Now, I am thisclose to stepping away from it. I recognize that the situation is not good for me at this time (it wasn't good for me 4 months ago either). So I need to try on a new hat: the hat of a person who has done all that she can do.
Emily
Subscribe to:
Posts (Atom)
Little bits about my life with MS
