Good afternoon!
I'm feeling pretty A.O.K. today. I haven't taken my full dose of Bonamine (for my wobbles) yet today. Also, I'm sitting at the computer, catching up with the virtual world. This is all a good sign.
Yesterday, I left a message for the MS clinic to call me about possibly re-starting my Rebif. I had a blood test on January 17, one month after stopping the Rebif, and I want to know if any numbers changed as a result.
Now why would I restart my Rebif...
I stopped my Rebif because I assumed that following surgery, I would have all my ducks in a row. I thought that all of my issues would be dealt with, all of my questions would have answers, and I would be either all systems go...or all systems red-lighted.
Instead, I am all-systems yellow lighted. I meet with the surgeon again in April (believe it or not, that is my surgery follow-up appointment), and in the meantime, I have to have another test with him, as he thinks that conceiving is not going to be possible at this time. So, I may just go back on the Rebif until April, and then figure out when my next surgery will be...and start this whole process over again.
OR
I might just floor-it through the yellow light.
Emily
I'm here
Posted in on Monday, February 09, 2009 by Emms
Lately, I haven't been up to much. Much to my disappointment and frustration, that darn surgery last Tuesday did take something out of me. It stinks.
I don't have the motivation or energy to do anything. Combine the after-affects of the anesthetic, MS, and the emotion of the surgery, I'm wiped. And, it still isn't over. There will be more surgeries in the near future. Why, why, why!? Well, I know why, I just don't like the reasons.
Along with the fatigue, are the wobbles. For now, I'm not attributing this to the lack of Rebif needles. Jason seems to recall that the wobbles came on last time, as well.
Obviously, I blocked such "terribles" from my memory.
Emily
I don't have the motivation or energy to do anything. Combine the after-affects of the anesthetic, MS, and the emotion of the surgery, I'm wiped. And, it still isn't over. There will be more surgeries in the near future. Why, why, why!? Well, I know why, I just don't like the reasons.
Along with the fatigue, are the wobbles. For now, I'm not attributing this to the lack of Rebif needles. Jason seems to recall that the wobbles came on last time, as well.
Obviously, I blocked such "terribles" from my memory.
Emily
what are they thinking?
Posted in on Sunday, February 01, 2009 by Emms
The Winnipeg MS Walk 2009 (coming up in April) is going to be different this year. I intercepted a phone call directed at Jason, as captain of Em's Slackers (our Walk Team), giving him/me the scoop on this year's walk. The purpose of the phone call was to encourage our team to pre-register for the walk, but at the same time, the coordinator shared with me the details of this year's REVAMPED walk.
Instead of having the walk in two different locations, at two different times, there will only be one location, and one time. Instead of holding the walk in either of the two previous locales: a beautiful tree-filled park or The Forks (a historic city location), it is being held in an affluent city neighbourhood. As well, there is only one distance available to walk: 6km. In the past, three different routes/distances were available.
I am shocked by this decision.
I can understand making changes to accommodate one location, and one time. By doing this, they are hoping for the largest MS Walk turnout in Canada. I have been known to say, go big or go home.
But if part of the goal is to be the biggest (often accompanied by the best) in Canada, shouldn't the walk be based out of the host city's well known, centrally located, federally designated, ever growing, beautiful park like location on the river...The Forks?
Surrounded by stories of our history, alive with the present, and building with the future.
The Forks represents community. Many argue that The Forks is the best part of Winnipeg! So instead of coming together for a cause in the city's historic meeting place, we're going to start and finish at a community high school, and walk 6 km through the streets of some of the most expensive houses in the city.
And don't get me started on the cutback of distance options!
Emily
Instead of having the walk in two different locations, at two different times, there will only be one location, and one time. Instead of holding the walk in either of the two previous locales: a beautiful tree-filled park or The Forks (a historic city location), it is being held in an affluent city neighbourhood. As well, there is only one distance available to walk: 6km. In the past, three different routes/distances were available.
I am shocked by this decision.
I can understand making changes to accommodate one location, and one time. By doing this, they are hoping for the largest MS Walk turnout in Canada. I have been known to say, go big or go home.
But if part of the goal is to be the biggest (often accompanied by the best) in Canada, shouldn't the walk be based out of the host city's well known, centrally located, federally designated, ever growing, beautiful park like location on the river...The Forks?
Surrounded by stories of our history, alive with the present, and building with the future.
The Forks represents community. Many argue that The Forks is the best part of Winnipeg! So instead of coming together for a cause in the city's historic meeting place, we're going to start and finish at a community high school, and walk 6 km through the streets of some of the most expensive houses in the city.
And don't get me started on the cutback of distance options!
Emily
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Little bits about my life with MS
