Showing posts with label twitches. Show all posts
Showing posts with label twitches. Show all posts

Oh the Twitching!

Oh, my legs. My flippy, floppy, twitchy legs. And now that the weather is changing, and the sun is hotter, my trusty heating pad is no longer going to be a wanted partner in my bed!

For months, I have slept with a heating pad under my calves. I find that without the heat, my twitches are worse. When the twitching is real bad, I lay on my side, and wrap the heating pad between and around my calves, twisting around so that is is tight on my legs: the combination of heat and binding helps to control things.

But now...dear legs...your season of twitches must come to an end....please.

Emily

body twitches

Since the beginning of my new reality, I have had random body twitches. Finally, they are reaching a frequency that I find concerning. All I can think about, is that I need to get back on my DMD (Rebif)...maybe it will make a difference. Did stopping my Rebif allow this to happen sooner rather than later? If I stayed on the Rebif, would it have not happened at all?

At first, the twitches were few and far between, not even a weekly occurrence. We joked that they were my "tell" in a poker game. I mostly had a shoulder twitch when I was stressed. Now, the twitches encompass more of my body, and I think, are more noticeable. They sure are to me!

I can be lying in bed, trying to fall asleep, and my leg jumps. Nike the cat, doesn't like this so much, as it disturbs her blankets. I can be talking with Jason, and my shoulder-upper chest-head area will jerk. It isn't a tremor - it's an all out movement: out of position and back again. The freakiest time is when it is my entire body - lying in bed, and I do the worm...or a body wave.

I don't know if there is anything I can do about it. When I first started with Dr E., my MS specific neurologist, I asked him if the twitches were caused by the MS . His response was non-committal. This was my way of telling him about the issue: I had already addressed it with my first neurologist, who wasn't in to treating symptoms, but rather seeing what symptoms would arise. My GP is supposed to be my primary care provider, even for MS, BUT, as he as told me before, he doesn't know enough about the disease. So, I'll wait another year, and take it up with Dr.E when I see him next.

Emily
Little bits about my life with MS

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