I don't do mornings. Never have...and quite possibly never will. Well maybe I will do mornings once I don't feel the physical and mental need to get 9-12 hours of sleep every 24 hours.
Yesterday, Jason and I were discussing whether or not I should put myself on a schedule - alarm clock and all. The discussion was pretty brief: no alarm clocks for me right now.
Back to why I was up early this morning:
I had my first physio appointment today. Things may have been more productive if my chart, with all test results, had been delivered to the rehab department. Instead, it stayed at the MS Clinic. The therapist administered some tests of her own, and many of them I executed a result that falls within normal range. I also mentioned to her that today was a fairly good day, symptom wise. Eventually, after placing me in total darkness and shaking my head around like a magic eight ball in her hands...she cracked the mystery..."ah ha!"
Her conclusion is that all of my symptoms "make sense" and we can try to better manage the symptoms...but no promises. I don't get that impression that the rehabilitation will only be as good as the student...there will be other uncontrollable factors interfering with the results.
Marbles still rattlin'
EMilY
drug update
Posted in on Sunday, February 03, 2008 by Emms
I am one step closer to starting my new drug therapy...Rebif. I received my prescription in the mail on Thursday, now I am awaiting my Exceptional Drug Status letter from the provincial government, so that I can get the take the prescription to the pharmacy to have it filled.
Safeway Pharmacy, where we take this prescription now offers 7 times the airmiles everyday, instead of 10 times on the first Tueday of the month. humph.
On Friday, I connected with Elsie, my new drug therapy nurse, courtesy of the drug company. Elsie is located somewhere in the 905 area code...which means I don't get to speak with her in person. My previous nurse, Rosie, has apparantly set the bar quite high. Not only was Rosie wonderful, but it looks like Teva Neuro as a company will have outplayed Serono in my world.
I am anxious to get going on this new drug. I will be injecting 3 times a week, versus every day. I suppose that is a bonus right there (and Rebif also claims to have the thinnest gauge needle in their field). However, I'm a bit nervous about the possible side effects...site reactions and flu-like symptoms (chills, achey, nausea). I asked Elsie how long the side effects are generally an issue for patients, and she said that she was unable to answer that. She said that I could experience the discomfort with each injection anywhere from a couple of days, to many months. Rosie would have given me an answer...and solutions! I guess that is why Rosie worked for Shared Solutions.
And...Rebif is going to cost us more out of pocket (compared to Copaxone) as we pay down our deductible starting in April.
I'm off to bed early tonight. I have a vestibular physio appointment tomorrow morning at 8:15! Yes, they really do have a short notice cancellation list! Obviously, no one took into account that I don't begin to roll out of bed until 9:30!
Emily
Safeway Pharmacy, where we take this prescription now offers 7 times the airmiles everyday, instead of 10 times on the first Tueday of the month. humph.
On Friday, I connected with Elsie, my new drug therapy nurse, courtesy of the drug company. Elsie is located somewhere in the 905 area code...which means I don't get to speak with her in person. My previous nurse, Rosie, has apparantly set the bar quite high. Not only was Rosie wonderful, but it looks like Teva Neuro as a company will have outplayed Serono in my world.
I am anxious to get going on this new drug. I will be injecting 3 times a week, versus every day. I suppose that is a bonus right there (and Rebif also claims to have the thinnest gauge needle in their field). However, I'm a bit nervous about the possible side effects...site reactions and flu-like symptoms (chills, achey, nausea). I asked Elsie how long the side effects are generally an issue for patients, and she said that she was unable to answer that. She said that I could experience the discomfort with each injection anywhere from a couple of days, to many months. Rosie would have given me an answer...and solutions! I guess that is why Rosie worked for Shared Solutions.
And...Rebif is going to cost us more out of pocket (compared to Copaxone) as we pay down our deductible starting in April.
I'm off to bed early tonight. I have a vestibular physio appointment tomorrow morning at 8:15! Yes, they really do have a short notice cancellation list! Obviously, no one took into account that I don't begin to roll out of bed until 9:30!
Emily
just my opinion
Posted in on Saturday, February 02, 2008 by Emms
"Here to call the battle of Alberta, Bob and Garry."
Tonight, those were the words of Hockey Night in Canada rink side reporter, Cassie Campbell. There is absolutely nothing wrong with the statement, except that she said it before the Toronto - Ottawa game! Calgary and Edmonton didn't play each other tonight...Edmonton don't play tonight at all!
The blunder in the statement is embarrasing, hockey fan or not. She is a Canadian Women's Hockey Icon! She is Canadian! She has 21 medals, 17 of them are gold! She is a former captain of the Canadian Womens Hockey team!
On Oct 14 2006, she became the first female Hockey Night in Canada colour commentator when Bob Cole was snowed in down the highway in Buffalo. Previous to that one appearance, and ever since, her role on HNIC has been that of a rink side reporter. I didn't hear Cassie on that game, but I have seen her work since then. With more that one year on the job, I fail to see what she brings to the broadcast: she is quiet and emotionless. She is about as captivating as watching the zamboni.
May she do better as Scotiabank's special advisor on hockey related initiatives (as announced on January 18).
Emily
Tonight, those were the words of Hockey Night in Canada rink side reporter, Cassie Campbell. There is absolutely nothing wrong with the statement, except that she said it before the Toronto - Ottawa game! Calgary and Edmonton didn't play each other tonight...Edmonton don't play tonight at all!
The blunder in the statement is embarrasing, hockey fan or not. She is a Canadian Women's Hockey Icon! She is Canadian! She has 21 medals, 17 of them are gold! She is a former captain of the Canadian Womens Hockey team!
On Oct 14 2006, she became the first female Hockey Night in Canada colour commentator when Bob Cole was snowed in down the highway in Buffalo. Previous to that one appearance, and ever since, her role on HNIC has been that of a rink side reporter. I didn't hear Cassie on that game, but I have seen her work since then. With more that one year on the job, I fail to see what she brings to the broadcast: she is quiet and emotionless. She is about as captivating as watching the zamboni.
May she do better as Scotiabank's special advisor on hockey related initiatives (as announced on January 18).
Emily
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Little bits about my life with MS
